In Sickness and In Health

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Sometimes I think it was just a bad dream…and then I look at my bruises from all the IV bags and needle draws and the rashes from the tape and I am reminded it is not a dream but my nightmare again.   C-Diff – Clostridium difficile has chased me for the past five years on and off, but I won again, it was a hard fought win, but a win!  I still can’t believe I didn’t know how sick I was, I actually went to work Monday, but it was soon obvious I could not stay… I left work at 11:30, contacted my GI Doctor and was sent to ER where I was promptly placed on IV fluids, in isolation by 12:30 pm the same day.  I stayed in the ER for the next 9 hours consuming 3-4 bags of much needed fluids as I continued to literally run to the bathroom in excess of 30 times over the course of the day.  I was lucky though, I had a hazmat room, but no connecting bathroom so they had to quarantine the common one for me, much to the condescending looks from the pregnant woman in the next cubby.  There were patients lined up in the halls, bleeding, handcuffed, high, MVA accidents, etc.  I was too tired and sick to be scared yet.  We were told I would be spending some time at the hospital but were waiting on a bed, that is when the reality of the situation started to sink in.  I did pack a small bag with a nightshirt, a book and my phone figuring a night of fluids was all I would need – wrong.  The hospital became my home for the next week.  We got word around 5:00pm that a bed was available and were just waiting for transport – there are two campus’ at this hospital and I was to be transferred to the other.  It would be 5 hours before I was actually transferred!  I really don’t know how we passed the time, did I mention it was also my 30th wedding anniversary!  Not exactly how we planned on spending it, but why should it be any different than the way we spent our 25th.  And they said it wouldn’t last – LOL.  My stay was not under pleasant circumstances, but the nurses made it so much better than it could have been… they pampered me even though I tried not to bother them… they listened to me… they encouraged me to have my pity party, that I had earned that right.  I don’t really like to complain, lets be honest, C-diff is horrible and lonely and degrading, but I was going to get better eventually.  I think about the kids with cancer that are so young and scared….. and also I think about the Parklands, the Sandy Hook… the list goes on and on.  When you are alone and miserable, all you have is your thoughts. Later comes the guilt for feeling sorry for myself.  But those nurses would not let me feel guilty, they picked me up when I needed it most, so I had my pity party and then moved on ready to fight the fight again!  They kept commenting on how my attitude was so good and upbeat for someone so sick… I didn’t feel that way, but I am glad I projected that.  You see, I felt like a burden to everyone, my family, my friends, my doctors, my co-workers and yes even those incredible nurses.  In my circle of friends and family, I don’t know anyone that has had the health issues that have plagued me over the years from a non terminal disease.  It seems I always have something… I often wonder if people think I am faking or exaggerating…I mean I know I am not, but it’s hard not to wonder what people think.  Being sick is lonely, you don’t want to burden people, but you want to be heard and understood, its’ a vicious cycle.  Sometimes I wonder if I am being punished.  I grew up with a very sick mother, my mother’s illness was always in her head, they were not physical ailments that you could see… she was manic and bi-polar.  I didn’t understand this as a kid or even as an adult if I am being honest, and I certainly did not feel empathy, I felt cheated.  So as I sit here recovering again, I have to wonder if this is some type of karma for not seeming to care when I was younger.

Author: myjourneybacktomyself15

I'm a journey to rediscover my identity, to overcome pain from too much surgery, CDiff and self limiting behavior. I am lucky enough to have a family to inspire me, as well as 2 rescue pibbles who need me to get back to me.

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